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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 14 of 14. This is the beginning of the thread.
Posted by Paul Smith on May 30, 2005, at 2:21:05
Does anyone else have this?? I went back on valium and it went away for about a month and came back. I have looked around and found no information about a med (usually neurontin is suggested) that consistently works or does not poop out. I am so so sick of this annoyance. Have had it a year. People say live with it as you have no other choice. Great! :-(
Posted by ed_uk on May 30, 2005, at 7:41:16
In reply to burning legs and other spots, posted by Paul Smith on May 30, 2005, at 2:21:05
Hi,
>I went back on valium and it went away for about a month and came back.
.......as you reduced the dose.....or spontaneously???
Ed.
Posted by Phillipa on May 30, 2005, at 16:45:52
In reply to Re: burning legs and other spots » Paul Smith, posted by ed_uk on May 30, 2005, at 7:41:16
Are you saying valium caused the burning? Or did it help it temporarily? Fondly, Phillipa
Posted by Larry Hoover on May 30, 2005, at 18:42:31
In reply to burning legs and other spots, posted by Paul Smith on May 30, 2005, at 2:21:05
> Does anyone else have this?? I went back on valium and it went away for about a month and came back. I have looked around and found no information about a med (usually neurontin is suggested) that consistently works or does not poop out. I am so so sick of this annoyance. Have had it a year. People say live with it as you have no other choice. Great! :-(
Paul, your parasthesia has been investigated by a doctor, right? You're not trying to manage this without knowing if your health is at risk, right?
The treatment of parathesia often depends on the cause. Yes, neurontin might be the perfect choice, but how is it that you're asking here for information?
I'm just concerned about whether you've had this properly investigated, or not.
Lar
Posted by Paul Smith on May 31, 2005, at 4:05:41
In reply to Re: burning legs and other spots » Paul Smith, posted by ed_uk on May 30, 2005, at 7:41:16
> Hi,
>
> >I went back on valium and it went away for about a month and came back.
>
> .......as you reduced the dose.....or spontaneously???
>
> Ed.Spontaneously. I have not reduced the dose, Really have no plans to right now. Do not really want to increase. 40 mgs of V is a lot. Tried a K switch for a day, side effects were more bothersome.
Posted by Paul Smith on May 31, 2005, at 4:09:13
In reply to Re: burning legs and other spots, posted by Phillipa on May 30, 2005, at 16:45:52
> Are you saying valium caused the burning? Or did it help it temporarily? Fondly, Phillipa
I do not know what is causing it, errant nerve signals I suspect. It started a year ago halfway through a Valium taper off, got worse, was there 6 months while off, went away when i went back on valium then came back. Only get it when i am sitting.
Posted by Paul Smith on May 31, 2005, at 4:15:04
In reply to Re: burning legs and other spots » Paul Smith, posted by Larry Hoover on May 30, 2005, at 18:42:31
> > Does anyone else have this?? I went back on valium and it went away for about a month and came back. I have looked around and found no information about a med (usually neurontin is suggested) that consistently works or does not poop out. I am so so sick of this annoyance. Have had it a year. People say live with it as you have no other choice. Great! :-(
>
> Paul, your parasthesia has been investigated by a doctor, right? You're not trying to manage this without knowing if your health is at risk, right?
>
> The treatment of parathesia often depends on the cause. Yes, neurontin might be the perfect choice, but how is it that you're asking here for information?
>
> I'm just concerned about whether you've had this properly investigated, or not.
>
> Lar
>
>Well I have asked if anyone else has it and apparently no one one that read my post does. I have had a physical exam, blood work recently, but do not have insurance and do not have the insurance or funds for any extensive investigations here in the land of "compassionate conservativism." It is a documented benzo withdrawal symptom though and I am on benzos. Could be tolerance withdrawal. It is also a documented anxiety symptom. It comes and goes and is made worse by stress.
Posted by Paul Smith on May 31, 2005, at 4:57:34
In reply to Re: burning legs and other spots, posted by Paul Smith on May 31, 2005, at 4:15:04
Parathesia is also a common withdrawal symptom with SSRI discontinuation, am really surprised no one here has reported experiencing this.
Posted by ed_uk on May 31, 2005, at 13:28:49
In reply to Re: burning legs and other spots to Ed, posted by Paul Smith on May 31, 2005, at 4:05:41
Hi Paul,
>40 mgs of V is a lot.
..........40mg would be far to much for some people........but too little for others. We are all individual.
>Tried a K switch for a day, side effects were more bothersome.
In what way? Perhaps the dose wasn't suitable. There are other benzos you could try if you wish.
Kind regards,
Ed.
Posted by Phillipa on May 31, 2005, at 16:50:41
In reply to Re: burning legs and other spots to Ed » Paul Smith, posted by ed_uk on May 31, 2005, at 13:28:49
Ed, Got scared yesterday. Went to crazymeds and he said l0mg was the usual dose of valium. Fondly, PJ O
Posted by Paul Smith on June 1, 2005, at 5:07:23
In reply to Re: burning legs and other spots to Ed » Paul Smith, posted by ed_uk on May 31, 2005, at 13:28:49
> Hi Paul,
>
> >40 mgs of V is a lot.
>
> ..........40mg would be far to much for some people........but too little for others. We are all individual.
>
> >Tried a K switch for a day, side effects were more bothersome.
>
> In what way? Perhaps the dose wasn't suitable. There are other benzos you could try if you wish.
>
> Kind regards,
> Ed.
>Once would be hard pressed to find a doc to give up like 50 to 80 mgs of valium a day Ed. I barely get 40. The usual seems to be 5 mgs 3 times a day. K though, no problem, with my dianosis they prescribe up to like 6 mgs a day. K though makes me feel real funky, hard to explain, and it gives me bradycardia and more depression. Also more muscle tightness and breathlessness. Pluses are it seems to be tougher on panic/anxiety and seems to be a better job at holding down the burning sensations. At times i want to just fast taper off this stuff but do not think I now have the emotional resources to do a hard hitting alice in wonderland terror struck withdrawal.
Posted by ed_uk on June 1, 2005, at 5:20:55
In reply to Re: burning legs and other spots to Ed, posted by Paul Smith on June 1, 2005, at 5:07:23
Hi Paul,
>Once would be hard pressed to find a doc to give up like 50 to 80 mgs of valium a day Ed.
Very true. Are you on 40mg at the moment?
>The usual seems to be 5 mgs 3 times a day.
In England, the usual dose is 2mg three times a day. Such miniscule doses would be valueless against my anxiety. When I (rarely) take diazepam, I normally take 10-15mg 'as required'. Less than 10mg is useless. I've never taken more than 30mg at once.
>K though, no problem, with my dianosis they prescribe up to like 6 mgs a day.
I don't think they appreciate how much more potent K is than V. They like the low numbers- it's dumb but it's true!
Have you ever tried chlordiazepoxide (Librium)? eg. 60-100mg/day.
Kind regards,
Ed.
Posted by Paul Smith on June 1, 2005, at 17:10:25
In reply to Re: burning legs and other spots to Ed » Paul Smith, posted by ed_uk on June 1, 2005, at 5:20:55
> Hi Paul,
>
> >Once would be hard pressed to find a doc to give up like 50 to 80 mgs of valium a day Ed.
>
> Very true. Are you on 40mg at the moment?
>
> >The usual seems to be 5 mgs 3 times a day.
>
> In England, the usual dose is 2mg three times a day. Such miniscule doses would be valueless against my anxiety. When I (rarely) take diazepam, I normally take 10-15mg 'as required'. Less than 10mg is useless. I've never taken more than 30mg at once.
>
> >K though, no problem, with my dianosis they prescribe up to like 6 mgs a day.
>
> I don't think they appreciate how much more potent K is than V. They like the low numbers- it's dumb but it's true!
>
> Have you ever tried chlordiazepoxide (Librium)? eg. 60-100mg/day.
>
> Kind regards,
> Ed.No my shrink gave me .5 mgs of K then switched to 20 mgs of Librium. He said he would not precribe either one over 6 weeks under any circumstances. Wish I had gone to him first! I`d still have my life. But at this stage of the game, all he did was re-ignite the dependency and give me Paxil, which set my mouth on fire. My 4th SSRI failure. It all seems to switch from day to day. Some days I just feel ill. Others, a bit of dr, others burning skin, others breathlessness. The minimal govt subsidized healthcare here is hardly responsive. They just want to yank the benzo, send you on a bad acid trip and toss in an SSRI. Even if one goes to a hospital and threatens suicide they just dope them up with Librium or an anti-histamine, refuse benzos and eject them in 72 hours telling them to "go to your family doctor." i have lost all of my patriotism in this ordeal. It is this supposed "best healthcare system" in the world that has disabled me, prescribing drugs with only half the side effects listed and no warning about long term withdrawal syndromes. Plus we are inventing all these pills. All while denying 82% of disability claims first try and making you hire a lawyer to fight it for a year. Success rates are much higher then but not eveyone has the resources to wait a year. Is easy to get food stamps though. So you can live in your car or the woods, eat vienna sauages and crakcers and wig out from benzo withdrawals. Yea, that`s a life... Thanks for reading the rant for those that did. Am afraid it is all true.
Posted by ed_uk on June 2, 2005, at 5:12:45
In reply to Re: burning legs and other spots to Ed, posted by Paul Smith on June 1, 2005, at 17:10:25
Hi Paul,
So what are you going to do? Are you staying on 40mg V??
Ed.
This is the end of the thread.
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